I’m dealing with a little bit of an injury from last night. I was stupidly over-tired and my balance was pretty bad. I should have been wearing a shirt that says “I’m Not Drunk – I Have MS!” I was walking on the grass when I twisted my ankle and went down hard. It was a little sore when I got home, but nothing major. However, when I woke up around 4:00 to go to the washroom, I put all of my weight on it – the pain was so intense and unexpected that I blacked out! Tee hee! So, here I am with a sprained ankle. It’s so swollen, I look like I have a cankle!
I’m such a dork.
Jan and I went out to Burlington for my Tysabri infusion this morning. I finally decided to have the blood work which will let me know if I’m positive for the antibody that causes Progressive Multifocal Leukoencephalopathy (PML), which is a fatal brain infection associated with us Tysabri folks. Frankly, I really don’t want to know if I’m positive. I already agreed to start this medication knowing I had a 1/1000 risk of getting PML. I think that’s what the odds are if you’re positive for the antibody. I’m not going off the medication regardless, so what’s the point of knowing? All it means is that I’ll have to get an MRI every 6-12 months if positive. Oh well. Whatever happens, happens! Back to the infusion – I have some good news and some bad news. The bad is that I won’t be seeing the nurse who usually does my infusion. She’s so nice and we get along great. The good news is that they are starting an infusion clinic in St. Catharines! Yea! No more almost hour drive up to Burlington. It’s only about 5 minutes from my apartment, so it’s perfect. My infusion next month will be here at the new clinic.
After the infusion, Jan and I were going to go shopping but I certainly couldn’t hobble around. She came back to my place and we played with the kids. Yesterday, they were all out on the balcony watching a moth:
I heard some crunching and sneezing, plus no longer noticed the big moth when I went back out. I’m going to assume one of the weirdos caught it. Yuck.
Anyway, went to see the doctor who did my sinus surgery. He said I’m still really swollen plus I have some scar tissue that he wants to chop away at. Since I was way too squirmy today, he said I should come back in a couple months. I’m pretty sure I’ll be squirmy that day too, so good luck to him!
I’ll be flying over Port Dover for the Friday 13th massive motorcycle gathering. They are estimating about 150,000 people tomorrow, so it should be a good show. Since I won’t be able to control my rudder pedals and brakes, I’m having another pilot go with me so he can do the taxiing (steering on the ground is done via the rudder pedals) and to help me with the rudders while taking off and landing. He’s never been over the bikers on Friday the 13th, so I’m sure he’ll get a kick out of it. At least the nice flight will be a little payback for utilizing his feet!
Today’s symptoms: A little more fatigued than usual today. Since my infusion, I’m very achy and my skin feels super-sensitive. I’ll rest well tonight and be great for my flight tomorrow!